Tuesday, June 9, 2009

Update

Monte went into surgery Monday at 5pm to place a bolt in his brain to measure his ICP Intercranial pressure. It came back surprisingly low...which means for now no shunt surgery. He's now hooked up to a monitor that reads the bolt through fiber optic cords hooked up to a computer. He came out of surgery into the PICU, where they monitor him constantly. It was -8 most of the night. Odd, since last time it was 25. Normal is like 5-10... He also had a small seizure last night. The current plan is to monitor him like this for 48 hours. However, it really surprised all of us. We're waiting to see Neurosurgery again to discuss the low pressure, the shunt seems to be overdraining, causing pain and possibly seizures??? So we're still waiting...
He did wake up a bit more today, finally, and felt like nibbling at food a bit. I'm encouraged, just tired and frustrated a bit too. He also used 3 signs, also good. But isn't able to suck out of a straw. It took almost 6 weeks to recover from the last big seizure in february. We're thinking positive thoughts...
And watching a ton of Disney channel, it seems to calm him to hear the music, also a good sign. Thanks for all the posts, I really appreciated them and feel your support.
Tiffany, what's going on with Katheryn? I do wish we were at the same hospital, we're incredibly lonely. I did get my cell phone charger, so you can text me again, but it's not technically allowed in the PICU, so I have to keep it silent and not take calls. Doug and Piper just arrived, I'm taking her out of the hospital for a brief respite together while Doug and Monte spend time together, then they're leaving about 7 tonight again.
Allyson, will you keep Grandma T posted?
Love you all!

3 comments:

Heidi said...

It seems like that happened to Holly once...the shunt working too well...I'll have to ask my dad and get back to you. Until then...be strong! We're praying for you!

Becky Martineau said...

My sister, who works in ICU and was in NICU, is wondering if they have been doing seizure mapping to isolate where the seizures are occurring within the brain. Your family is in our prayers, that you will have peace and sure guidance.

Higley's said...

Claire,

That is really strange that the pressure would be that low & still be having seizures! I hope they figure it out soon & that Monte recovers quickly from all this. Hang in there you are in our prayers!