So please keep our little family in your prayers...Monte had a huge uncontrollable seizure Monday morning, was taken by ambulance "red hot" (with lights and sirens) on a 40 ride to the better hospital, then life-flighted via Helicopter to St. Louis Childrens Hospital. Meanwhile, I drove like a demon to meet him up there, a 4 1/2 hour drive from the hospital.
On Tuesday the Neurosurgeons decided to do a surgery to place a "bolt" in his skull to test the CSF Pressure...then immediately rushed him into surgery when it registered 25. Normal is apparently 0-5. Since then he's still struggling. He hasn't been able to keep down any liquids since we've been here, and he retches all night and day. He's sleeping much too much...and no one can figure out why. The new shunt (Revision #28) is in a great place, draining well, and looks great on C.T.
Our Neurologist said today, "Sometimes when we don't understand something we wait awhile until it just goes away"
That seems to be the current plan, as soon as he wakes and starts eating and feeling better, we should be able to head home.
Thanks to our friends who helped arrange the driving and babysitting of Piper...she's hanging out with her dad this week, who is currently unemployed. Talk about great timing, right!?! So they're entertaining each other.
So, gotta get back to Neuro-Floor, humbly asking for your prayers for Monte...
Claire
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12 comments:
Thinking of you and praying for you! Keep us posted...
We'll be praying for you guys and hoping Monte gets feeling better soon.
We love you guys. Of course you are in our prayers
I am so sorry to hear about Monte. We will keep you all in our prayers.
your family is in our prayers! for many reasons it looks like! *hugs*
Adam and Penny
Claire,
Heavenly Father will watch over you, your son, and your family. I know he will. My prayers are there for you too. Love ya.
You are in our prayers as well! I'm sorry to hear about all this. I'll call Doug soon!
Craig and Molly
Give Monte big hugs for me Claire. We will definitely be praying for all of you guys. I hope he starts feeling better soon and that you guys get to go home soon! We miss you guys.
Oh dear. Sounds like you have quite the heavy load at the moment. You are DEFINITELY in our prayers! I hope Monte recovers quickly and things work out with everything else.
claire -
wish we were closer to help out some how. You can count on our prayers though.
Monte's a fighter I'm sure and all will be well. We love guys!
-reyes family
How did I miss this post!? Thank you for keeping us up-to-date via text...and thank you for the long chat on Sunday. I needed that. As always, you're in my prayers. I love you!
Your family is in my thoughts and prayers!
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