So please keep our little family in your prayers...Monte had a huge uncontrollable seizure Monday morning, was taken by ambulance "red hot" (with lights and sirens) on a 40 ride to the better hospital, then life-flighted via Helicopter to St. Louis Childrens Hospital. Meanwhile, I drove like a demon to meet him up there, a 4 1/2 hour drive from the hospital.
On Tuesday the Neurosurgeons decided to do a surgery to place a "bolt" in his skull to test the CSF Pressure...then immediately rushed him into surgery when it registered 25. Normal is apparently 0-5. Since then he's still struggling. He hasn't been able to keep down any liquids since we've been here, and he retches all night and day. He's sleeping much too much...and no one can figure out why. The new shunt (Revision #28) is in a great place, draining well, and looks great on C.T.
Our Neurologist said today, "Sometimes when we don't understand something we wait awhile until it just goes away"
That seems to be the current plan, as soon as he wakes and starts eating and feeling better, we should be able to head home.
Thanks to our friends who helped arrange the driving and babysitting of Piper...she's hanging out with her dad this week, who is currently unemployed. Talk about great timing, right!?! So they're entertaining each other.
So, gotta get back to Neuro-Floor, humbly asking for your prayers for Monte...
Claire
Thursday, February 26, 2009
Saturday, January 17, 2009
Sunday, January 11, 2009
Emily Schlerf's Sugar Cookies
This is the ultimate, best recipe for sugar cookies, given to me by my sweet neighbor at Ricks College. Dorm 2 anyone? Try them, and let me know if you agree...or if you know her! It's the only one we use, it wins all taste tests hands down.
2 cups sugar
1 cup butter
2 eggs
1 tsp vanilla
1 cup sour cream
6 1/2 cups flour
2 tsp baking soda
1 tsp salt
Mix sugar, butter eggs. Alternate adding sour cream with dry ingredients to the sugar mixture. Blend really well. Chill in refrigerator for about an hour. Roll out 1/4 inch thick, cut with cookie cutters. Bake at 375 for 6-8 minutes on ungreased cookie sheet. Don't overbake! Let cool on cookie sheet or wire rack. Frost with cream cheese frosting. (Mine is on the cinnamon roll recipe).
2 cups sugar
1 cup butter
2 eggs
1 tsp vanilla
1 cup sour cream
6 1/2 cups flour
2 tsp baking soda
1 tsp salt
Mix sugar, butter eggs. Alternate adding sour cream with dry ingredients to the sugar mixture. Blend really well. Chill in refrigerator for about an hour. Roll out 1/4 inch thick, cut with cookie cutters. Bake at 375 for 6-8 minutes on ungreased cookie sheet. Don't overbake! Let cool on cookie sheet or wire rack. Frost with cream cheese frosting. (Mine is on the cinnamon roll recipe).
Thursday, January 8, 2009
A favor:
Here's some pictures of Monte's favorite toys! They are all discontinued, but they are usually readily available at D.I.'s. And for so cheap! Ebay has a few occasionally, but they can't beat DI's prices. Or maybe you have some that your kis have outgrown. So, the game is on! We will reimburse all costs, shipping,toys, ect, and bribe you with all kinds of presents, ect! He so rarely falls in love with new toys, and these have been tried and true favorites. They've gotten him through so many ups and downs...but they're starting to break on us!
Since we don't have DI's or even thrift stores with them, we're relying on the sweetspirit of service and love. Can you help us? The toys are mostly Fisher price, there's two different pianos, a drum, a star stacker, a fishbowl, a cookie jar, a square shape sorter, a monkey flashlight, a tiger flashlight, a bert, ernie,or cookie monster (when you shake them their head open and closes). Bonus points for the ABC mirror toy, it's nearly impossible to find! (And I can't find any identifying labelson it). The Boyles gave him a Milestone alien looking fabric toy that somehow got lost during our move...and we miss it a lot!
Also, any Fisher Price musical toys, he loves, loves, loves them! Hmm, and Piper is very into Little People right now, and only has a few people/animals. Thank-you, and we love you!
Sunday, December 21, 2008
Pumpkin Waffles
Ok, I keep getting requests for this recipe, so here it is, once and for all. Thanks to Patricia, the originator of the recipe, I hope it's ok if I post it!
Mix together:
2 cups flour
2 tbsp baking powder
1 tbsp cinnamon
1/2 tsp nutmeg
1/4 tsp salt
Separate 4 eggs. Beat yolk slightly, add 1 1/2 cups milk, 1 cup pumpkin, 1 tbsp vanilla, and 3/4 cup margarine (1 1/2 sticks). Add flour mixture.
Beat egg whites to stiff peaks. Add to above mixture.
Syrup
1 cube butter
1 cup sugar
1/2 cup buttermilk
1 tsp karo syrup
Boil. Remove from heat. Stir in 1 tsp baking soda and 1 tsp vanilla. Best if served hot!
Mix together:
2 cups flour
2 tbsp baking powder
1 tbsp cinnamon
1/2 tsp nutmeg
1/4 tsp salt
Separate 4 eggs. Beat yolk slightly, add 1 1/2 cups milk, 1 cup pumpkin, 1 tbsp vanilla, and 3/4 cup margarine (1 1/2 sticks). Add flour mixture.
Beat egg whites to stiff peaks. Add to above mixture.
Syrup
1 cube butter
1 cup sugar
1/2 cup buttermilk
1 tsp karo syrup
Boil. Remove from heat. Stir in 1 tsp baking soda and 1 tsp vanilla. Best if served hot!
Tuesday, December 16, 2008
Special Christmas Pictures
The family picture is at the Osmund show. We had so much fun dressing up and posing in the pretty building.
Christmas Fun Again!
We had a blast making sugar cookies for our neighbors, of course wearing the matching Christmas aprons I made with my mom's help a few Christmas's ago. Unfortunately, Monte's now fits Piper, so we need to do some sewing!
Monte's traditional "Beard check." He always wants to make sure that Santa is real! He also loves to stroke his soft, furry coat. It's sweet...and so is Santa to allow the examination.
Christmas Fun!
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