So please keep our little family in your prayers...Monte had a huge uncontrollable seizure Monday morning, was taken by ambulance "red hot" (with lights and sirens) on a 40 ride to the better hospital, then life-flighted via Helicopter to St. Louis Childrens Hospital. Meanwhile, I drove like a demon to meet him up there, a 4 1/2 hour drive from the hospital.
On Tuesday the Neurosurgeons decided to do a surgery to place a "bolt" in his skull to test the CSF Pressure...then immediately rushed him into surgery when it registered 25. Normal is apparently 0-5. Since then he's still struggling. He hasn't been able to keep down any liquids since we've been here, and he retches all night and day. He's sleeping much too much...and no one can figure out why. The new shunt (Revision #28) is in a great place, draining well, and looks great on C.T.
Our Neurologist said today, "Sometimes when we don't understand something we wait awhile until it just goes away"
That seems to be the current plan, as soon as he wakes and starts eating and feeling better, we should be able to head home.
Thanks to our friends who helped arrange the driving and babysitting of Piper...she's hanging out with her dad this week, who is currently unemployed. Talk about great timing, right!?! So they're entertaining each other.
So, gotta get back to Neuro-Floor, humbly asking for your prayers for Monte...
Claire
Thursday, February 26, 2009
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